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IPF Disease Information & Support Network

Details: If you’re looking for information on idiopathic pulmonary fibrosis (IPF), you’ve come to the right place. Play the video below to get an in-depth look at IPF or explore the site to find the tools and support you need to take charge of your health.

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IPF Patient Treatment Plan

Details: A healthy diet plays an essential role in your overall physical and mental health. A diet rich in nutrients and low in saturated fat, trans fat, cholesterol, salt, and added sugar, along with a healthy balance of fruits, vegetables, whole grains, lean meats, poultry, fish, beans, and fat-free or low-fat dairy products, will help you get the

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Lungs&You Call Center

Details: The overall goal is simple: raise awareness about the global health challenges that rare diseases cause, and harness everyone’s positive creative energy to help find ways to make a difference. Each year, people with idiopathic pulmonary fibrosis (IPF)—and their families and friends—use Rare Disease Day as a platform to take action.

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Understanding IPF

Details: Watch how Connie took control of her health by continuing to push for answers. Getting Answers IPF Video – Connie’s Story - Lungs and You. PC-US-100730. Dr. MaryLuz Fuentes’ Story. MaryLuz was a busy doctor, wife, and mother when she received a life-changing diagnosis—IPF. Watch her story to see how she’s come to cope with this rare

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IPF Personal Symptom Tracker Tip Sheet

Details: health. Dates. Notes General symptoms: Record any other symptoms you may have, including feeling generally unwell, skin rash, dry eyes or mouth, or rounding or widening of fingertips or toes (clubbing). Other notes: Anything else you'd like to mention to your healthcare provider, including changes in how you feel, questions, goals, concerns

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Getting Answers IPF Video – Connie’s Story

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Progression of Idiopathic Pulmonary Fibrosis (IPF)

Details: The symptoms of idiopathic pulmonary fibrosis (IPF) are not always noticeable or bothersome until the disease has already progressed. As the disease continues to progress, most patients with IPF experience a gradual worsening of lung function.

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Living with Idiopathic Pulmonary Fibrosis (IPF)

Details: Review your private health insurance plan. If you are under age 65, this will be your primary source of coverage; private plans offer varying coverage, especially concerning experimental treatments and services such as hospice care. (Learn about palliative and hospice care.) Most plans cover nursing homes, assisted-living centers, and home care

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IPF Diagnosis Story Video

Details: When Connie began experiencing symptoms like shortness of breath and a persistent cough, her doctors said everything looked fine. Watch how Connie took control of her health by continuing to push for answers. Getting Answers IPF Video – Connie’s Story - Lungs and You

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Oxygen Therapy and IPF

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Sign Up for IPF Support – Lungs and You

Details: By selecting "Sign Up," I agree to allow Boehringer Ingelheim Pharmaceuticals, Inc. and companies working on its behalf to use this information to contact me about health- and product-related information and services associated with idiopathic pulmonary fibrosis and other products.

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Rare Disease Day & IPF Events

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The IPF Caregiver’s Role Video

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Find a Pulmonologist – Lungs and You

Details: Find a pulmonologist in your area that can help to diagnose idiopathic pulmonary fibrosis (IPF) and provide guidance in finding a suitable IPF treatment.

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Interstitial Lung Disease Progression Management – Lungs

Details: Lung transplants are reserved for patients who have no other significant health problems, such as cancer; heart, liver, or kidney disease; or chronic infection, among others. For those with IPF, a common type of ILD, only about 2.6% of patients are candidates for the lung transplant waitlist.

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TIP SHEET Exercise: ACTION PLAN Record: Connect: WHAT …

Details: physical and emotional health. Relaxation techniques such as meditation or breathing exercises can make a difference in helping you relax and prepare for sleep. Prescribed Treatments: Some patients require supplemental oxygen or medication for their shortness of breath or insomnia. Make sure you follow your doctor’s prescribed treatment to

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Options for Managing the Symptoms of IPF

Details: If you have any questions about other health conditions you have, or the medicines you are taking for them, be sure to talk to your doctor. Call Lungs&You

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TIP SHEET LIVING WITH OXYGEN

Details: Pack extra medication along with information about your medication, disease, and health. Talk with your doctor about obtaining a handicap parking permit. Have a backup plan in case something does not work out. TRAVELING WHILE ON SUPPLEMENTAL OXYGEN 08/18 PC-US-104571

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Helpful Information About Living with IPF

Details: Taking Care of Your Mental and Emotional Health Studies show that depression among people with IPF is very common. If you have any of the symptoms described below, talk to your healthcare team: Feelings of guilt, worthlessness, or helplessness Eating more or less than usual No longer wanting to do activities once liked to do PC-US-106474

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The Needs of Patients and Caregivers

Details: National Jewish Health Richard Kradin, MD, pulmonologist and psychiatrist, Pulmonary and Critical Care Unit, Massachusetts General Hospital Dolly Kervitsky, RCP, CCRC, nationally recognized patient advocate Carolyn Spada, RN, BSN, interstitial lung disease nurse coordinator, The Center for Interstitial Lung Disease, University of Washington

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Oxygen Therapy and Quality of Life

Details: Your health care provider can help you choose the right company to meet your needs for supplemental oxygen. Learn more at medicare.gov Living with Oxygen Preparing the House When using supplemental oxygen, it’s important to prepare your house in advance. Avoid using oxygen around open flames, cigarettes, and heaters,

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Taking Charge of Your Diagnosis and Treatment

Details: Pulmonary rehabilitation, oxygen therapy, and disciplined nutrition and other lifestyle changes might be part of your daily prescribed disease treatment

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Understanding Palliative Care in IPF

Details: or behavioral health, may not be reimbursable. In addition, you may have spending limits or high deductibles, depending on your unique plan. Remember, palliative care should not be confused with hospice care or end-PC-US-106474. of-life care. Instead, it is a key component of your care to effectively

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Learn About Oxygen Therapy

Details: Learn tips for living and traveling with supplemental oxygen Download Tip Sheet . The Possible Benefits and Risks of Oxygen Therapy. The use of supplemental oxygen in people with IPF who have low oxygen

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Maintain Control While Living with IPF

Details: and managing any other health problems you may have. Ongoing communication with your healthcare team (doctors, nurses, social worker, pharmacist, etc.) is important to ensure you’re getting the appropriate care at all times. Education and Planning Education and planning comes from the partnership you establish with your healthcare team

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TIP SHEET LIVING WITH OXYGEN

Details: Pack extra medication along with information about your medication, disease, and health. Talk with your doctor about keeping up with vaccinations and obtaining a handicap parking permit. Have a backup plan in case something does not work out. TRAVELING WHILE ON SUPPLEMENTAL OXYGEN PC …

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Financial, Insurance, and Legal Information

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Caring for Your Caregiver

Details: difference in improving their health and your relationship with them, which can translate into spending more enjoyable and meaningful time together. Caregivers may neglect to see their doctor, suffer from depression and feelings of isolation, and feel their independence and social lives are compromised.

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Rare Disease Day

Details: awareness about the global health challenges that rare diseases cause, and harness everyone’s positive creative energy to help find ways to make a difference. Each year, people with idiopathic pulmonary fibrosis (IPF)—and their families and friends—use Rare Disease Day as a platform to take action. ( …

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IPF Support Communities

Details: improving lung health and preventing lung disease. The organization focuses its efforts on lung disease research, education, and advocacy. Visit the American Lung Association. Inspire. Inspire is an organization that partners with national advocacy groups to help connect patients and caregivers, including those affected by IPF.

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Creating Your Daily Roadmap

Details: mental health. A diet rich in nutrients and low in saturated fat, trans fat, cholesterol, salt, and added sugar, along with a healthy balance of fruits, vegetables, whole grains, lean meats, poultry, fish, beans, and fat-free or low-fat dairy products, will help you get the …

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About Lung Transplants

Details: overall health status. In the past, individuals over the age of 65 rarely received transplants. However, because surgical techniques and results have improved, more centers are performing transplants in older patients. Risks of Lung Transplantation

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